The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences. The group was incorporated in 1995.

We are a non-profit organisation which is run by volunteers who have a family member with CdLS. We do not receive any regular Government funding, and rely on membership fees for information dissemination via our newsletter "Keeping in Touch" (KIT). We also produce topic specific information packages, provide counselling, and host awareness activities).

To become a member of our Association print the MEMBERSHIP AND DONATION FORM and send completed form to PO Box 20, Putney, NSW 2112

Fundraising activities support our Conferences and clinic days, which give parents a chance to meet others - sometimes for the first time. Professionals and Parents are able to share information for the benefit of CdLS children and adults, and research results are reported.